UPDATE: Catching up from my last post – July 9, 2021 (Today: 07-26-2021)
My July 9th Blog Update
was so packed with information, therefore, if you want to get even more
information, you can go back and read my post prior to this one.
As I shared in my last post, Dr.
Bondly, my Oncologist, was in full agreement with me that I did not need to go
a full 3 weeks after my treatments without having my blood panels ran. It is
just too risky. Therefore, on July 14th, I went back to the Bruno
Cancer Center and had more bloodwork ran to see where my numbers were following
my July 8th chemo treatments. They took 10 vials of blood!
Well, sadly, they had plummeted
again. My White Blood Count was below ZERO. My Red Blood Count was at a mere
2.61. My Hemoglobin was very low at 8.8. There are a lot of numbers involved in
testing, but those give you the general perspective. I also had a Peripheral
Blood Smear. It was for the purpose of checking to see if I had developed an
autoimmune such as Lupus that might help explain my Red Blood Count being so
aggressively attacked. PRAISE GOD….that test proved to be NEGATIVE!!! I also
had a test for Platelet Antibodies. If that showed to be positive, it would
mean that my body has created antibodies to attack my Platelets. This is
potentially very serious. Although, my Platelets are consistently running low….they
do fluctuate up and down….but, no where near normal. But, PRAISE GOD, all testing
for the Platelet Antibodies showed NEGATIVE!!!!
Because of my low Blood Counts and
Platelet Counts, I had to have a Blood Transfusion and Platelet Transfusion
while I was at the Cancer Center. I felt so blessed to be able to have these
transfusions immediately! Thank You Jesus! There is no way to know each time
how long the transfusions will help or how long they will stay in your body. It
varies per patient. But, for this day, I received exactly what I needed and
that was fantastic!
On July 21st at 7:45am,
I was back at the Bruno Cancer again. We did a CBC (Complete Blood Count) with
Differential, a Comprehensive Metabolic Panel, along with several other blood
profiles. Following the blood test results, I had a Consultation with Dr.
Bondly.
Last week, we did not do the
Metabolic Panel; therefore, I did not know what my Tumor Markers were after my
chemo treatments on July 8th. I was extremely disappointed and
somewhat shocked that my Tumor Markers had barely changed. I usually see a
greater decrease after chemo treatments. My Cancer Antigen or Tumor Markers
were 2963.2 which is very high. On July 8th they were at 2996.0, but
on July 2nd, they had went down to 2422.0….still extremely high, but
was moving in the right direction. My White Blood Count was up to 3.1….still
low, but much improved. My Red Blood Count and Hemoglobin were both lower. My
AST or Liver Enzymes are always high as it shows liver damage. However, it was
lower on the 21st than on the 8th. My AST numbers have
been much higher, so I am just thankful they are a little lower today.
Although my numbers were more
negative than positive, Dr. Bondly felt overall positive. She said that I
looked better than I have in a while. I appreciated that positive feedback. Dr.
Bondly is going to be gone on vacation for the next two weeks, but her main
nurse, Ed, will take great care of me. I am scheduled to go back on July 29th
and have another CBC Panel ran plus a Metabolic Panel. I will wait for the results
and if my numbers are high enough, I will be able to have my chemo treatments.
If they are not high enough, I will go back on Friday, the 30th, and
have bloodwork ran again. If I need Blood and Platelet Transfusions, I will
have them Thursday.
I was so concerned with my Tumor Markers
not going down after my last treatment, I called the Cancer Center on the 22nd
and spoke to Ed. He explained that since my chemo treatments have been reduced
by 30%, we will probably not see drastic changes after each treatment. However,
the key is that the numbers continue to go down or up….depending on the
individual specifics. He read me a couple of notes directly from what Dr.
Bondly had written after our Consultation and that brought me peace as well as
Ed’s assurance.
My son, Michael, has had to take a
lot of time off of work because a lot of time, I have to have someone with me. Since
being diagnosed with Metastatic Breast Cancer in my Bones, Liver, and Bone
Marrow….there have been times that I have been an extreme fall risk, couldn’t
walk on my own, and couldn’t stand long enough to cook for myself. Michael
cooks for me, cleans the house, does all the shopping….on and on. Between
Ashleigh and Michael, they take turns taking me to the Cancer Center. On days
that I have Consultations with Dr. Bondly, Ashleigh always goes with me. She
asks the tough questions and keeps a record of everything. I am so beyond
blessed to have my children. When Ashleigh goes with me, Michael stays with my
grands so that she can go.
Cancer is so tough on everyone in
the immediate family. It is a family effort just to get from one day to the
next. For now, this is the course of my life. I am going to the Bruno Cancer
Center at least 3 weeks out of a month (4 trips)….sometimes more. I have
bloodwork at least 3 times a week, with possible blood transfusions and antibiotics.
The day of chemo treatments I have bloodwork to give me the go-ahead. I also
have a Bone Shot that day. On the next day, I go back to the Cancer Center to
the Shot Room and have the Neulasta Shot in my arm. I am also now taking the
prescription to help fight the ulcers and thrush in my throat and mouth after
chemo treatments.
So after my last chemo treatments
that were reduced by 30%, I had a Bone Shot, a Neulasta Shot (to help increase
White Blood Count), Blood Transfusion, Platelet Transfusion, 7 days on a strong
antibiotic, Diflucan 100MG, and the Miracle Mouthwash 3 times per day.
I have been knocked to my knees
and sometimes even worse; however, with this last combination, I am praying
that we finally have found our right combination. YES, it is a lot to go
through, but so worth it if I can continue this path and get better. Another
reason I question if my last chemo treatments worked is because I have felt so
much better than I ever have after a treatment. I have felt like I am “living
life” and not just existing.
I have been able to have my grands
over to spend the night for the first time since beginning of the year. I was
honored to have visits and prayers from Patrick Mead, Minister of the Our Safe Harbor
Church in Springhill, Tennessee on July 5th and Tim and Cindy Haddock, who
serve on the Pastoral Care Team with the North Blvd. Church of Christ in
Murfreesboro, Tennessee on July 24th. I finally felt safe enough, although my
immune is still low, to get my COVID vaccine. So, Ashleigh, Michael, and I went
together and got our shots Saturday. I have not been able to gather in the
assembly since the first of the year. I spend my Sundays watching several
gatherings online, but I felt that yesterday was the time to go back. I wore my
mask and was able to enjoy in-person singing, praying, and a good message. It
felt so good!
God is SO GOOD to me!!!! Since my
last chemo treatments on July 8th with all of the other additions
that we are now including in my treatment protocol, I have felt human again. I
have not taken a pain pill in at least 3 weeks or more. Yes, I still have pain,
but for now….I can deal with it without having to take medication. If I can do
without any pain medication, I prefer not having it filter through my liver. I
use doTerra Deep Blue Cream on my legs every night. It helps with my joint and
bone pain….plus the restless legs that I get from chemo. I also take a pill
every day to help with bone and joint pain.
Our God is a God of miracles. Just
as we read about in the Bible, we still see Him perform miraculous healing
today. He is our Healer....our Great Physician, and we can confidently approach
Him asking for healing. In faith, ask God for healing. Proclaim His power and
goodness, believing and trusting Him to take care of you or those you're
praying to be healed.
"Praise the Lord, my soul, and forget not all His
benefits....Who forgives all your sins and heals all your diseases, Who redeems
your life from the pit and crowns you with love and compassion, Who satisfies
your desires with good things so that your youth is renewed like the
eagle's."
Psalm 103:2-5
If you would like to bless me with a financial love
offering to help with my medical expenses, my address and GoFundMe link is
below. With my increased medical care needs, my cost out of pocket continue to
rise. I am not getting in bills that my part is anywhere from $500+ to over
$2,000+. I have Medicare and Blue Cross Blue Shield Advantage. The BCBS
Advantage is NOT good insurance. I am thankful for what little it pays, but my
cost for deductibles and co-pays continue to rise. It took a very long time for
me to find any Cancer Center that would take me outside of Alabama with the
insurance I have, but I finally....after about 3 weeks of conversations....got
approval from MD Anderson. I still don't know yet what my total out of pocket
expenses are going to be for that trip. I can understand why no one wants to
accept this insurance....because it just doesn't pay. For me to get insurance
that will cover me out of state will cost over $500 per month as I have already
checked into it, but that is way out of my range of possibilities.
1010 Gary Alan Trace
Moody, AL 35004
Patrick Mead - Our Safe Harbor Church
Tim and Cindy Haddock
- North Blvd. Church of Christ
Our God is an Awesome God! He has never
left me in my 3 year war with cancer….not even for a moment. I feel His
presence, His peace, and His calm. I hear His voice…not audibly, but I hear it
in my soul as His message is fed to me through His Most Holy Spirit. He told me
on day one….3 years ago….that I was going to be okay and I take that as a
direct promise to me. He feels me with hope and allows my heart to dream of the
beauty that is yet to come…here…here on Earth with my children and grands. He
feels my mind with imagination. He shows me that no matter my health, I can
still serve others for His glory and their good in so may ways. Our limitations,
in many cases, are set by our unwillingness to push through. I am so excited to
forge ahead and see what dreams can come true! I believe that I will defy all
odds and statistics! I believe and am convinced that God is going to bless me
with many more years to walk on His magnificent creation.
Thank you all for your continued prayers for me and my family, cards, calls, texts, messages, financial support, and special gifts. I am blessed beyond measure.
Love to you all!
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